Dear visitor,
welcome to the IF Knowledge Network website.
Sharing knowledge is the is the first step towards limiting the effects of a disability.
Please join our network on Spina Bifida and Hydrocephalus and transmit us all your ideas and experiences.
Therefore we are setting up this Knowledge Network, so we can make this knowledge available to the rest of the world.
Pierre Mertens - President IF
Mar 8th, 2010 at 12:13 pm 0 comments
Q: Is there a list of scientific studies about Spina Bifida and Hydrocephalus?
A: There is a great number of studies available about Spina Bifida and Hydrocephalus. The Australian association SBH Queensland regularly gathers and publishes a selection of titles. They can be found under the tab \\\"Documents\\\".
Mar 20th, 2009 at 7:25 am 0 comments
Q: Can you recommend specific information about the Human Rights of people with a disability?
A: The Harvard Project on Disability offers Human Rights Training Materials which you can download from their website: http://www.hpod.org/publications/human-rights-training.
Nov 13th, 2008 at 7:57 pm 0 comments
Q: How can I help my young child to learn more about Spina Bifida?
A: The Childrens Hospital in Los Angeles created an online book for children with Spina Bifida, it can be found here: http://www.myspinabifidabook.org/
Oct 1st, 2008 at 12:04 pm 0 comments
Q: Hello. My son is eleven years old. He has problems on walking and needs to cath regularly. He needs my help to do the intermittent catheterization. For that reason I asked on my work a special time to help my son, but I had a negative answer. I would like to know what the international organizations are where I can have leg...
A: Dear, For the moment we do not have any expertise in this area. Our expert gave as advice to teach an 11 year-old with Spina Bifida to be independent with catheterising. Teaching independence may be a viable alternative, if the child is able to learn to do this himself.
Sep 3rd, 2008 at 3:22 pm 0 comments
Q: Hello, my son is eleven years old and now he is growing very fast; the feet are losing strength with the weight of the body and are emphasising the pronation. I wonder what kind of orthopedics are the most suitable for this case, since my son can walk. Thank you
A: The best advice is to bring a visit to the doctor (orthopedist) who followed the patient as for now. Because no orthopedist who knows something about Spina Bifida can give any advice concerning adapted orthopedics without seeing the patient. However in general it is known that patients, when they get larger, their heavin...
Sep 2nd, 2008 at 4:40 pm 0 comments
Q: Where is the IF international conference being held?
A: In 2009, the IF conference will be held in Florida, USA. More information about the conferences can be find on the website www.ifglobal.org
Sep 2nd, 2008 at 3:53 pm 0 comments
Q: What is the incidence of Spina Bifida in newborns in Europe?
A: On the website http://eurocat.ulster.ac.uk/ you can find the results of this search.
Feb 19th, 2008 at 2:41 pm 0 comments
Q: I am looking for a list of general references about hydrocephalus. Can you help me?
A: Alfred Aschoff, M.D. Ph. D. from the University of Heidelberg, Department of Neurosurgery, has been kind enough to supply such a list (see Documents).
Feb 19th, 2008 at 2:36 pm 0 comments
Q: I am looking for a list of references about Venöser Hydrocephalus. Can you help me?
A: Alfred Aschoff, M.D. Ph. D. from the University of Heidelberg, Department of Neurosurgery, has been kind enough to supply such a list (see Documents).
Feb 19th, 2008 at 2:32 pm 0 comments
Q: I am looking for a list of references about Hydrocephalus valve tests . Can you help me?
A: Alfred Aschoff, M.D. Ph. D. from the University of Heidelberg, Department of Neurosurgery, has been kind enough to supply such a list (see Documents).
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The Knowledge Network is an initiative of IF global - the International Federation for Spina Bifida & Hydrocephalus.
Concept, Design & Implementation by Bert Schodts & Maarten Troonbeeckx, former students of the Advanced Master in e-Media @ GroupT (Leuven).